Who What When Where Why

I'm about 500 days with Morgellons symptoms, comorbid with external micro-myiasis for the past 45. My symptoms first presented internally as Crohn's-like with a permanent bladder infection, plus neurological features of Lyme disease such as recurring Bell's Palsy (12 times) and subjective vertigo, tremendous fatigue, and body ache. It progressed recently to a full blown myiasis with a subdermal larvae bed in my upper left arm, and transdermal pupations that can present the fibers. The myiasis was triggered by a combination of a compromised immune system, certain environmental conditions met, socio-economic pressures, and a DOP diagnosis each of seven consecutive trips to the medical industrial complex in the past two months - for my girlfriend. Her situation is as dire as mine and she presents a slightly different subset of symptoms, though we share the core group. We both have degraded noticeably and now can no longer work normally due to brain fog, ADD, neurological impairment, and physical appearance. By the grace of universe I have SSDI from a prior back injury, which barely sustains us. We get by with help from a small network of insiders and a larger one we call outsiders, those that love and help us but remain in a psychological protection mode until they can handle the truth. Until then we must be crazy, we must be causing our symptoms and damaging ourselves, and we must have the now mythical DOP, a truly lazy and embarrassing catch-all that the medical industrial complex will have to soon backtrack from once Morgellons spreads deeper into the global human population and takes the rich, the privileged, and the families of those in power.
We live in Northern California in a hotspot on the coast. We won't focus on our identities but we're not hiding, you will find us if you want. I will show photos and videos which will be very graphic and honest, though we're not here to engage the non-believers in a game of proof-and-denial. We are well beyond needing to prove it and deep into pathways of healing and management.
I am 42 and my girlfriend is 30. She has custody of her 5 year old daughter, who is not yet presenting overt symptoms. I have two adult boys, who live 150 miles away. We live on a parcel of land with my father who is 73 and would chalk every symptom up to old age, so let him we say. He's an insider who has really stepped up after watching his son drop 70 lbs in a year, and we share 5 buildings. He lives in the big house, while we three and our two dogs cram into a couple of 700sqft cabins. We have two storage barns as well.
Our water is acidic at 5.5ph. Our main cabin is almost always in the shade, and at about a mile from the ocean we get constant moisture. Our heat is wood stove, our tech capacity is above average because I rebuild computers and manage friends personal networks, and our social networks are of average but shrinking size. We are dramatic and artistic, loud and funny, and depressed and besieged. We are terrified for our little girl and it can be said my fight is for her.
More about us will materialize from future posts. I will post every day. Hey, I've got 500 days of painstaking video/photo documentation to weed through....terabytes, seriously. I'm hoping that somewhere in our story is hiding a piece of the puzzle, a key to understanding and combating this parasite. I'm going to find it.